Mrs. T. had been in and out of the psychiatric building
numerous times in 2018. This was mostly because of off a rapid decline in her
dementia/Alzheimer’s after almost 10 years of slow decline following her
initial diagnosis. The struggle of maintaining a semblance of our normal life
then centered around things beyond memory loss. That began to include episodes
of dangerous wandering, and finally going beyond frustration to anger,
agitation, assaults and extreme violence. Weeks of what she called
the lockup or prison were intended to find medications that would control or
limit those behaviors. For those of you who may be unaware of all this there
are stages of this awful disease but in the end every victim can be different.
My mom who also had Alzheimer’s simply, quietly faded away. For many the ride
is often like a roller coaster things get worse, then temporarily they get
better and so it goes. the last time Barb came home after three weeks of
treatment I still had hoped for respite. The next morning she had relapsed once
again. After three days and little sleep a friend called and asked me how I was
doing. I replied with a single word,” horseshit”. He said " I’ll be right over
and take you and Barb to the emergency room. It was 30 miles away. I planned to
sit in the back to try to keep Barb calm and prevent any aggressive behavior
towards our friend the driver. She wouldn’t do it. Of course, because of the
nature of things the caretaker is often perceived in these moments as the
enemy. She sat in front than next to the driver.
I was quickly reminded when our boys were small and not
feeling well we often took them for rides. They had a calming effect. That’s
exactly what happened in this case. Upon arrival at emergency in the big city
we were quickly signed in and told to wait in a large waiting area. There must’ve been over 100 people waiting in this area as well. It
was then I happened to notice a very large sign proclaiming the mission of the
clinic and its hospitals. The large words stated …… The patient comes first.
After a relatively brief wait two women approached us and
said “hi Barb, it’s time to go see the doctors.“Then Barb stood up looking
quite peeved saying ”I’m not going anyplace to see those F$%(@ing doctors. They’ll
put me in a nursing home!" And so it went and a large audience grew due to all the excitement. Finally I was told she could not be admitted since she didn’t agree to
the plan. I pointed out she had been there in the hospitals psychiatric lock up three
days before and perhaps they could call that department and get her admitted.
That couldn’t be done either but it was suggested that I call the Police
Department and they could presumably bring her in to see the doctors. I
suggested this was absurd and I wasn’t going to call the police. I actually thought of calling the local newspaper
but then remembered I had never read an article in paper that criticized
the world famous local clinic/hospitals for anything.
Then a break occurred which included the two nice ladies
saying they would have to check with their supervisor. They did. Shortly
thereafter, a gentleman in suit and tie approached me in a calming manner and
repeated the usual excuses and bureaucratic jargon to which I responded in a
somewhat loud and agitated manner which I will not repeat here. And the
audience grew. This was good. Eventually I put my best smile on and leaned a
bit towards him saying ”Sir,
I might have a solution to your problem” “Mmmm” What
? Perhaps your people could bring out a wheelchair and set it in front of me
and my wife.. I will sit in the chair and if they happen to mention it’s
possible this guy could be having a heart attack….” Ok that’s not good but I was desperate. So it
happened that is I sat in the wheelchair which Barb quickly grabbed and pushed
me down a hallway and into the emergency room. Where I suggested they break
protocol and call Dr.*&^% in the
psychiatric building. 15 minutes later
he appeared and took Barb back to psychiatry.
Three weeks later with another round of different meds Barb was moved to
memory care in the same city where I visit her each and every day, sleeping
well at night myself knowing she has a new and safe home. Our operating motto remains Were still a team,
and we keep on trucking.
Protecting your reputation is a key to the reputation of many a big bureaucracy.
Next: memory care lays down the law -part three a bureaucratic basics